Resources Page If you have a specific need, please feel free to ask. |
Resources for Caregivers
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Family Care Councils: This web site is for people in the developmental disabilities community. It provides information for individuals and their families about requirements, procedures, and services affecting their lives. Our goal is to inform and educate; helping families and consumers to be better self advocates. http://www. fccflorida.org Family Network on Disabilities: Family Network on Disabilities of Florida, Inc. is a statewide network of families and individuals who may be at-risk, have disabilities, or have special needs and their families, professionals, and concerned citizens. Our mission is to ensure through collaboration that Floridians have full access to family-driven support, education, information, resources, and advocacy and to serve families of children with disabilities, ages birth through 26, who have the full range of disabilities described in section 602(3) of IDEA. http://www.fndfl.org Florida Institute for Family Involvement (FIFI): An organization dedicated to creating solutions, strengthening partnerships, enhancing community collaboration and building an information base for children and youth with special needs and their families. Children with special health care needs are those who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally. http://www.fifionline.org/ The Family Café, Inc.: A non-profit statewide organization, was created to fulfill an unmet need in Florida: the need for information. The Family Cafe is proud to offer educational opportunities and information on meaningful topics for individuals with disabilities and their families in a family-centered environment. We hope this information will help individuals with disabilities make sensible and educated decisions regarding the services they receive. http://www.familycafe.net The Central Directory has provided services to thousands of families and providers seeking advocacy, education, training, resource and referral, and information on disability services available in their communities. The Central Directory maintains a database which contains a wide range of information on community services, counseling, diagnosis/evaluation, early intervention services, education and training, equipment, medical screening, special education services, support groups, and therapies. The national toll-free number is 1-800-654-4440. http://www.centraldirectory.org Autism Society of Florida, Inc. Web: www.autismfl.com Autism Recovery Network Web: http://www.autismrecoverynetwork.org/ Center for Autism and Related Disabilities (CARD) (One of six regional centers for autism and related disabilities) E-mail: card@mbi.ufl.edu Web: www.card.ufl.edu To identify the CARD serving your region, either call the 800 number above, or visit: www.card.ufl.edu/state.html Americans with Disabilities Act Information Services: This site has a list contains the telephone numbers and Internet addresses of federal agencies and other organizations that provide information about the Americans with Disabilities Act (ADA) and informal guidance in understanding and complying with different provisions of the ADA. http://www.usdoj.gov Americans with Disabilities Act Information Services: This site has a list contains the telephone numbers and Internet addresses of federal agencies and other organizations that provide information about the Americans with Disabilities Act (ADA) and informal guidance in understanding and complying with different provisions of the ADA. http://www.usdoj.gov National Council on Disability (NCD): An independent federal agency making recommendations to the President and Congress on issues affecting 54 million Americans with disabilities. NCD is composed of 15 members appointed by the President and confirmed by the U.S. Senate. NCD's overall purpose is to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities, regardless of the nature or severity of the disability; and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society. http://ncd.gov National Organization for Rare Disorders: The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. http://www. rarediseases.org The National Alliance for Autism Research: To raise money to fund, promote and accelerate biomedical research and science-based approaches that seek to determine the causes, prevention, effective treatments and, ultimately, a cure for autism spectrum disorders. www.naar.org or www.autismwalk.org The National Association for the Dually Diagnosed (NADD): The leading North American expert in providing professionals, educators, policy makers, and families with education, training, and information on mental health issues relating to persons with intellectual or developmental disabilities. The mission of NADD is to advance mental wellness for persons with developmental disabilities through the promotion of excellence in mental health care. http://www.thenadd.org/ Angelwish: We are going to remove all the obstacles that have stood in your way of helping others, especially children and their families that are living with HIV/AIDS. http://www.angelwish. org/ Brass Ring Society: The Brass Ring Society is a national non-profit organization that designs programs for children with life threatening and terminal illnesses and other children who are handicapped, abused and mentally retarded. http://www.printhousegallery.org/brassring.html Chef David’s Kids: We help children afflicted with any form of terminal illness such as cancer, leukemia, and pediatric HIV. We also help with neglected and abused children. We have handled thousands of interactions and wishes for children in the last ten years and have never failed to help when needed, no matter how many times a child needs us. http://www.chefdavidskids.com/ Children's Hopes & Dreams: Children we serve suffer with illnesses such as cancer, cystic fibrosis, AIDS, Hodgkin's disease, leukemia, muscular dystrophy, and sickle cell, to name only a few. We cooperate with organizations such as the American Cancer Society, serious illness camps, Ronald McDonald Houses, children's hospitals nationwide, Leukemia Society, Muscular Dystrophy Association, and many more. http://www.childrenswishes.org/ Children's Wish Foundation International: Children's Wish will fulfill the favorite wish for any child not expected to reach age 18. Each wish, truly the child's own, must be completed while the child is healthy enough to fully enjoy it. The immediate family is included in the wish fulfillment, so that the child and family will share in the experience and create happy memories together. http://www.childrenswish.org/ Dream-A-Wish Foundation—Florida: Dream-A-Wish has a goal to stop the clock and give Central Florida families a few quality hours away from pain, worry, and stress. This happens when we complete a dream and give them a week of wonderful memories to last a lifetime. http://www.dream-a-wish.org/ Dream Factory: The Dream Factory grants dreams to children diagnosed with critical or chronic illnesses who are 3 through 18 years of age. http://www.dreamfactoryinc.com/ Fairygodmother Foundation: Fairygodmother Foundation make wishes come true for individuals (18 and older) and loved ones in their time of greatest need by turning dreams into reality. http://www.fairygodmother.org/ Give Kids the World: This organization is not a wish-granting organization in the strictest sense. Rather, it works with other wish foundations to send children with life threatining illnesses to the Central Florida area. Every child that comes to Give Kids The World does so with the sponsorship of another wish granting organization. It has served children from all 50 states and more than 45 countries. http://www.gktw.org/ Believe In Tomorrow National Children's Foundation: Our programs and services help children with life-threatening illnesses believe in hope, joy and the promise of tomorrow. Our foundation is dedicated to improving the quality of life for critically ill children and their families through three unique programs. Serving over 38,000 children each year, we have become a national leader in pediatric support services that help to ease pain, reduce loneliness and bring joy to children throughout their treatment process. http://www.grant-a-wish.org/ Jason's Dreams For Kids: The organization is devoted to granting wishes to children diagnosed with life-threatening illnesses. Bringing a little happiness and putting a few smiles on these children's faces is our goal - and hopefully, their parents faces, too! http://www. jasonsdreamsforkids.com/ Kids Wish Network: Kids Wish Network is a nonprofit charitable organization whose sole mission is to grant wishes to children with life-threatening illnesses. We're always looking for ways to provide unique services for sick children and their families that they are not likely to find anywhere else. Kids Wish Network has developed a funeral assistance program to assist the families of "our kids" who have passed away. http://www.kidswishnetwork.com/ Make-a-Wish Foundation of America: This organization which serves all 50 states, Guam, and Puerto Rico grants wishes to children in the United States with terminal illnesses or life- threatening medical conditions that create the probability the children will not survive beyond their 18th year. http://www.wish.org/ Special Wish Foundation, Inc.: This organization's mission is to enhance the quality of life for those children/adolescents (under 20 years of age) who have a life-threatening or terminal disorder by allowing their special wish to become reality. It has 21 chapters throughout the U.S. as well as a chapter in Moscow, Russia. http://www.spwish.org/ Starlight Children's Foundation: This organization is dedicated to brightening the lives of seriously ill children through wish granting and state-of-the-art in-hospital entertainment. It has a network of chapters located in the United States, the United Kingdom, Australia, and Canada. http://www.starlight.org/ Sunshine Foundation: This organization which serves those across the United States fulfills dreams and wishes of chronically ill, terminally ill handicapped and abused children. The majority of wishes the Sunshine Foundation fulfills are to visit a Central Florida attraction. http://www. sunshinefoundation.org/ United Special Sportsmen Alliance: A non-profit Christian organization that routinely coordinates with other caring organizations worldwide in fulfilling a dream wish. If you know of a child [or adult] who is terminally ill or disabled and would like to go on a FREE DREAM HUNT, FISHING TRIP AND CAMPING OR CANOEING please contact U.S.S.A and we will try to fulfill their “Dream Wish.” Working with deer, elk, turkey, bear, pheasant farms, and property owners as well as, preserves and ranches has made our hunting, fishing trips and outdoor adventures known nationwide. http://www.childswish.com/ Wishing Well Foundation: The Wishing Well Foundation will consider the wish of any child with a life threatening illness from ages 3 to 18. The Wishing Well Foundation receives referrals from doctors, nurses, and people just like you! Many of the wishes are for trips to theme parks or a special day with a special someone . . . perhaps a celebrity or hero. The wish can be most complex or very simple. http://www.wishingwellusa.org/ |